The Bone Cancer Research Trust is a charity that provides funding for primary bone cancer research, raises awareness of disease, provides patient information and support services. The charity operates in Ireland and England, Charity Number 1113276, registered in 2006 in England and Wales.
Video Bone Cancer Research Trust
About
The Bone Cancer Research Trust is a charity in Ireland and the UK, dedicated to fund research on primary bone cancer, particularly osteosarcoma and Ewing's sarcoma.
The vision of charity is 'a world in which life is no longer limited by primary bone cancer.' 'The charity aspires to an authoritative voice on primary bone cancer in Britain and Ireland.
The purpose of this charity is to improve results for people with primary bone cancer through research, awareness, information and support.
Maps Bone Cancer Research Trust
History
The Bone Cancer Research Trust was originally a parent group that began in September 2004. Five families who lost teenage children to osteosarcoma and who all wanted to see more research done on this rare cancer to hopefully improve the outcomes for sufferers in future. together.
The parent group increases with the addition of the family, including one from Ireland, whose children are battling another primary bone cancer, Ewing's sarcoma. Expanding the group helps bring together the skills and enthusiasm and funds that have accumulated. The family raised money of Ã, £ 176,000, to start a charity and fund the first part of the study.
The Bone Cancer Research Trust became a charity registered in March 2006 and in September 2006, the first two successful applications for research grants have been received.
Growth
In just two years, the meeting of a small group of grieving parents grew into a significant and credible International charity with a turnover of around Ã, £ 500,000 per year, which encourages the research of the causes and treatment of primary bone cancer, and specifically of osteosarcoma and Ewing's sarcoma.
Website
The Bone Cancer Research Trust's website, providing information about charitable activities, including details from previous studies and now funded by charities; primary bone cancer information, information for Health Care Professionals, dedicated Irish sections, patient forums, stories about bone cancer travel, links to Twitter and Facebook BCRT pages, and YouTube Channels.
Research funding
Charities usually issue two research calls per year; until now the charity has funded 24 projects totaling  £ 800,000 resulting in numerous publications.
Today's activity and future direction
Families that make up the charity also have great concerns about the lack of reliable information, this is most evident in Ireland but few detailed sources of information are available in either the UK or the internet as a whole.
Along with research funding, the provision of information is now one of the charitable activities. The Bone Cancer Research Trust provides information (online and printed) about primary bone cancer for patients, their families, the general public, the media and Health Care Professionals. There is currently detailed information on osteosarcoma and Ewing's sarcoma and the glossary/medical dictionary. BCRT produces specific information intended for teenagers. In addition, information about other primary bone cancers such as chondrosarcoma, chordoma, spindle cell sarcoma, angiosarcoma, and open and recruited clinical trial lists will be available in the future.
Charity also provides support for patients and their families and friends, and in the long run, specialist counseling services may be available to them.
Raise awareness
The Bone Cancer Research Trust has an annual 'Awareness Week' where charities concentrate on getting as much local and national media coverage to inform and educate the public about the symptoms of primary bone cancer. The bone cancer research website Trust Information about bone cancer symptoms is more complete than all other British and Irish sources of information. This is important for medical practitioners when they are diagnosing as well as for young people and their parents when they need to be aware that some symptoms really need to be checked by a doctor.
During the Awakening Week various activities were conducted by the supporters of the charity, with the main campaign being Bake a Cake for Bone Cancer. Another highlight is the annual Patient and Support Conference, which brings together patients and parents with many different professionals whose jobs affect the lives of those who find themselves with a diagnosis of bone cancer.
Fundraising
The work of the Trust of Bone Cancer Research is almost entirely funded by the public. Charities raise money through donations, community fundraising events, retail and inheritance.
Publications
The Bone Cancer Research Trust generates twice-yearly bulletins entitled The BCRT Update.
Partnership
The Bone Cancer Research Trust has the status of the National Institute of Health Research (NIHR). The charity also works with Sarcoma UK, The Teenage Cancer Trust, and Information Standards.
Celebrity Ambassadors
Holly Branson, Sam Waley-Cohen
Supporting Celebrities
James Corden, Diane-Louise Jordan, Paterson Joseph, Piers Morgan, Amanda Holden, Marina Berry, Ben Shephard, Aled Jones
See also
- Cancer in the United Kingdom
References
External links
- The Trust of Bone Cancer Research
- About BCRT
- National Institute of Health Research
- Sarcoma UK
- Teen Cancer Confidence
- Irish Cancer Society
Source of the article : Wikipedia
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